admin April 23rd, 2011
Ok. I tried to post my entire history on here and realized a week later that it was trumped to ~20%
Ok. The short of this is…
The skin of my scrotum has burned for 6 months and a few days now.
The skin on my head, face, neck, shoulders and chest has burned for 3 months now.
The skin of the head, face, neck, shoulder and chest typically look healthy (no pink or redness. I am fair skinned.). They are only red if I wash several days in a row, but the skin burns 24/7 like a "carpet burn" or "indian rub burn." For the past month now, the skin has been so sensitive that I cannot wash it but every 2 or 3 days even with so called "sensitive skin soaps." I have ordered a different brand of sensitive skin soap nearly every week for the past 6 months (I bet you had no idea there were so many). I have tried the Eucerin, Basis & Vanicream that seem to be so popular, and many more including the rather exotic Neem Aura. Even shampoos hurt. I have tried several shampoos.
Also, I have seen a doc every 2 weeks for this — 6 different ones: 2 GPs, 2 urologists, 1 dermatologist, 1 neurologist. They are unable to offer any relief. LITERALLY NOTHING IMPROVES THE APPEARANCE OF THE SCROTUM. Nothing improves the sensitivity of all the areas besides leaving them alone for 2 days or more, but I have developed severe acne in doing so… at age 38!!! I have tried several things topically and orally for the pain, which while it is not usually intense, it is constant and annoying. The only thing that has helped with the pain is ice.
This week, my lips are beginning to burn. It seems whatever this is spreads slowly.
My questions are:
1) Any ideas anyone? It’s ok if you are not a medical professional or if you are. I hold noone liable here.
2) I am appaulled by both the apparent lack of compassion/sympathy and the apparent lack of competence by the doctors. Perhaps I do not know what to expect in medical care and expect too much. To the doctors’ credit, I will say that things don’t look bad 99% of the time (apart from the scrotum which looks only mildly red and excessively wrinkled and no longer "retreats" — EVER.). Only 1 of the 6 docs is even friendly, at least projecting a caring spirit. NONE of the docs have done any test except at my explicit request, and all of these test were from the nice GP. The dermatologist has never done a skin scrape or biopsy. Does this seem "good" medical practice? Is this "standard" medical practice? If not, what do I do? How do I get the medical care that I feel I deserve and that I am paying for?
I’d like to share a lot more details, but let’s see if this fits…